Diagnosis and post-diagnostic support

Leader

University of Lyon

Diagnosis and post-diagnostic support

The objective of this work package is to provide to the EU Member States, clear, evidence-based and tested information and recommendations on how to effect change and improvement in dementia diagnosis rates and post-diagnostic supports; and in using different tools and approaches for diagnosis for people with dementia.

The rate of dementia diagnosis varies greatly between Member States and in many places, post-diagnostic support is non-existent or underdeveloped. Where a diagnosis occurs later or is communicated poorly and without subsequent interventions, the risk of institutionalisation and other poor outcomes for the person and their family is significant. This is not optimal for either the person living with dementia and their family nor the health and social care system.

Improving diagnosis rates and post-diagnostic support for people with dementia and their carers allows people with dementia, their families and those involved in their care to benefit from access to treatments, interventions, information and education as well as services which can improve quality of life, facilitate hope and the opportunity to live well with dementia. Better care planning facilitated by post-diagnostic support can also contribute to reducing health and social care expenditure on preventable hospital and residential care admissions for people with dementia.

Work Package Leader - Pierre Krolak-Salmon

Professor Pierre Krolak-Salmon is a neurologist and geriatrician at the University Hospital of Lyon (France), director of Clinical Research Memory Centre of Lyon and of the Clinical Research Centre “Elderly, Brain and Frailty”, head of the Social Cognition and Cognitive Disorders research group at Neuroscience Center of Lyon. Professor Krolak-Salmon attended medical school at the University of Lyon between 1987 and 1994, he completed his Neurosciences Master in 1999 and his PhD on brain dynamics of facial emotional expression recognition in 2004. During the course of his career, Professor Krolak-Salmon has also studied at the Wellcome Trust in London, UK and Johns Hopkins Hospital in Baltimore, USA. Professor Krolak-Salmon currently has an active teaching role at the University Claude Bernard in Lyon, in the fields of neurocognitive disorders, dementia, Alzheimer’s disease, geriatrics, neurology, neuroscience and neuropsychology. His main areas of research interest include biomarkers (CSF and neuroimaging) and predictors of autonomy loss in dementia; social cognition and emotion recognition; clinical neurology and geriatrics.

In 2016, he created the Lyon Institute For Elderly (Institut du Vieillissement des Hospices Civils de Lyon), a large consortium gathering medical, research and teaching resources of the University Hospital of Lyon, France. He is now the vice-president of the French Federation of Memory Centres.

Partners

National and Kapodistrian University of Athens

The mission of the National and Kapodistrian University of Athens is to advance knowledge and educate students in sciences and arts that will best serve the nation and the community in the twenty-first century.

Italian National Institute of Health

The Institute conducts scientific research in a wide variety of fields, from cutting-edge molecular and genetic research to population-based studies of risk factors for disease and disability. Research priorities are based on those set forth in the National Health Plan. The Institute is also involved in several major clinical trials, which are frequently conducted in cooperation with the Scientific Institutes for Research and Care (IRCCS) network and Hospitals.

Alzheimer Europe

Alzheimer Europe is a non-governmental organisation (NGO) aiming to provide a voice to people with dementia and their carers, make dementia a European priority, promote a rights-based approach to dementia, support dementia research and strengthen the European dementia movement.

Medical University of Lublin

The Medical University of Lublin has a long history of conducting medical studies in Poland and over 20 years of experience in teaching foreign students.

Claude Bernard University

Claude Bernard Lyon 1 is a university that provides teaching for 45,000 students a year in the fields of science and technology, health and sport.

Claude Bernard Lyon 1 is part of Université de Lyon, the most important French University site outside the Paris region. 

Bulgarian Society of Dementia

We are non-profit  non- governmental organization aimed at improvement of dementia diagnosis, treatment and care in Bulgaria. Our research programs are devoted to the prevention, early diagnosis, treatment and care of neurological disease  affecting cognition. We are working closely with universities, university hospitals and other partners.

Norwegian National Advisory Unit on Ageing and Health

We provide competency building and guidance for the entire health service, both the municipal health care services and the specialist health services, to other service providers, clients (patients and their next of kin) and the population in general. Ageing and Health operates a number of research- and development projects and has its own publishing house and library. We offer courses, training programmes and run a vocational school. Knowledge is also communicated through our journal Demens & Alderspsykiatri and via our digital platforms.

Ministry of Health (Italy)

Profiles

Pr Pierre Krolak-Salmon

Lyon Institute For Elderly, Clinical and Research Memory Centre of Lyon, Hospices Civils de Lyon

Hôpital des Charpennes, 27 rue Gabriel Péri, 69100 Lyon-Villeurbanne

FRANCE

Tel: Tél. +33 4 72 43 20 50

E-mail: pierre.krolak-salmon@chu-lyon.fr; or actondementia@gov.scot

Website: www.actondementia.eu

Make it happen

Once the evidence reviews were completed, work packages turned their attention to identifying which best practices to test and in which healthcare settings and geographical locations.  More information will become available here as this work progresses.

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